Monday, July 10, 2006

Now What?

So now I have to make a decision before my next appt. I could wait 3 months and see if it grows and then most likely have surgery or I could have surgery in a few weeks to remove it, which would involve removing part of the bone at the back left part of the orbit that the tumor is against and a minimum 2 day hospital stay. Since it wasn't there 4 years ago and they don't know what it is Dr Grove is leaning toward removal (although not pushing me by any means). I think I'm also leaning toward the surgery. I'm having a hard time accepting that this is happening, it is almost like it is happening to someone else. The not knowing what it is has already driven me a bit crazy with speculation though. If my Dr, who is a very respected orbital tumor specialist in practice for many years and the other staff at Mass Eye & Ear don't know what it is then that is a bit scary to me! I also don't think I want to wait until it presents with worse symptoms that might not be able to be corrected.

There are times that I feel a little displaced since I don't have a definite diagnosis and while my Dr said it is a brain tumor of some sort it is in the orbit, against the bone and not the brain cavity. Leave it to me to come up with an unusual brain tumor! LOL

I'm interested in opinions on whether I should have the surgery to find out and remove the tumor (I was told that if they went in they would just remove it instead of a biopsy because of where it was). You can post a comment in the guest book to let me know what you would do. Any pros/cons about Mass Eye and Ear are also welcome, although I will say my experience with them so far has been great and VERY fast.

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