I wanted to thank everyone who responded to my last post. I'm a bit embarrassed that I was feeling so sorry for myself!
It has taken a few days and several phone calls (leaving messages) but I was finally able to get through to one of Dr Black's nurses and another member of his staff a few minutes ago. I had felt slightly better on Sunday and Monday, partially thanks to one Braintmr list member who was a help with my pain meds and another list member who I was able to talk to and helped to calm some of my fears. I did write an email to the Drs office as well as leaving several messages. Then late yesterday I started to feel really strange, A warm tight feeling started in the back of my head and I felt like I was going to pass-out or throw-up if I stood up or talked. I also started having double vision out of my right eye, not just when I had both eyes open. So I left another message with the Drs office and today several people finally called back. I think they are taking me seriously now! They told me to get up to Brigham & Womens ER today and if that is too far (it is 1 1/2 hrs away) then to go to Jordan Hospital in Plymouth which is a satellite hospital for BWH. Now I'm waiting to hear back to see if anyone in my family can give me a ride up there, so while I wait I thought I'd let you all know what was going on. I know I should have probably gone back sooner but I really was starting to feel better after I had written my last post, and talked to family members last Saturday night, stopped taking all the tylenol, etc. I thought that I was back on the road to recovery and wanted to start doing things around the house. Last night scared me a lot though and I'm ready to go back to the hospital, not wanting to have that feeling ever happen again!
Just thought I'd give you an update, I'll post again when I get back from the
hospital. I just don't have the strength to email everyone personally at this time. Oh, on a slightly happier note, it looks like we will be able to make our house payment thanks to my husband's boss and my Dad :-)
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10 comments:
Hi Sue,
You sound so scared, I hope you can find someone to get you to the hospital. Ideally back to Boston.
I have been thinking about you and was really sorry to read what a rough time you are having. Lots of Zen that the Dr.s can get to the bottam of this.
Vicki
Please know that you are being thought of and that wishing you someone to drive you in.
I'd be happy to do so but am 9 hrs away from you.
However if no one else comes tothe rescue
let me know!
God go with you.
Jann
Sue, I wish I lived closer to you. I would be more than happy to drive you to appts etc. Am sending you lots of setter zen and keeping you in my daily prayers. Jeanne
Sue, I am so very sorry you are having such a rough time of it.
Got some extra special Setter Zen to send your way.
I hope you can get some of your problems resolved.
Jill
and the red heads
Hi Sue,
You have been in my prayers and I know alot of others as well. Setter zen runs strong for you!!!!
My son, greg, had a meningioma removed on 8/26 by Dr. Black. Greg was readmitted on 9/8 and stayed until 9/11. He went in by ambulance, as recommended by the visiting nurse. that way he got right into the ED. In Greg's case, it was two infections and dehydration. His white count and platelets were high and his elctrolytes were off.
It made a world of difference in his recovery.
I urge you to go back to BWH.
Hi Sue,
Please know that the Setter community is pulling for you, we have not forgotten what you are going through. The saying 'that which does not kill us makes us stronger' is true. I had 2 Cancers 9 years ago and kept it mostly to myself, It's better to share your grief and fear with friends and family. Healing Setter Zen coming your way from Alabama.
God Bless, Judy
Hi Sue, glad you went back to the hospital there is no sense going thru all the pain and anxiety of not knowing what to do when things were happening that you could not understand. let us hope that now with nurses and doctor paying more attention to your condition that you will start to mend better.Jade and i are still saying those daily and nightly prayers for your recovery.Dee Gendron
I follow up, even if I don't post, and I am glad to hear that you are feeling a bit better and also your financial situation is at least temporarily resolved. I understand about the worry about that part too... I ended out going into the hospital AFTER the GKS, surprisingly......That was a financial burden, so now we have an over $100,000 bill we think. My own husband is military, so they will pay some but not all. We figure about 75% when all is said and done. My husband doesn't care, as long as I am going to be FINE.
Best of luck to you!!!!
PS.... I am fortunate and am back to work, hopefully you will make a quick turn for the better.
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