Indication for Ultrasound Consultation: Orbital Mass
Impression: Characteristics matches a cavernous oval hemangioma within the muscle cone with pressure on globe.
Mass Characteristics:
- Heterogeneous
- High internal reflectivity
- Regular internal structure
- Moderate sound attenuation
- Within muscle cone
- No observable attachment
- Abutting globe behind macula
- 6.5mm x 3.5 mm
- Oval lesion
- Sharp borders
- Firm consistancy
Here is a drawing that was included so you can get a better idea of where it is located:
These are just a few of the things I now wonder (and will ask the new Dr on Tuesday)....How can two ophthalmologists, Dr Bien-Fang & Dr Calderon, find the new tumor and yet it wasn't found by the staff at Brigham & Woman's on the MRIs? Was it there the whole time or did it just now grow in the last month? Can a cavernous hemangioma grow that quickly? If I have to have surgery again do I have a NS do it or an ophthalmologist who specializes in orbital tumors? If I had a venous angioma (one of the possible pathology results of my orginal tumor) why was that confused with a meningioma and why was it removed when I read that you generally shouldn't remove them? Is this why my surgery went to 9 1/2 hours? I have also read that sometimes Venous Angiomas are associated with Cavernous Hemangiomas so was this new tumor there the whole time or could it have appeared when the venous angioma was removed? Could the "episodes" I have been having be bleeds attributed to a cavernous hemangioma? What is the difference between cavernous hemangiomas, cavernous angiomas, ccms, etc? Is there anyone else out there that has a tumor in their orbit?
I have done some new research on cavernous hemangiomas and found a wonderful site with lots of info called Angioma Alliance (www.AngiomaAlliance.org) and hope to find answers to some of my questions there.
Other then my frustration over the whole situation I am doing OK. A number of my cognitive problems have been rectifying themselves (YEAH!). I do still have doublevision, no tears or tear drainage in my left eye which results in having to use both drops and gel to keep the eye moist, my left eye is sinking slowly into my eye socket, there is A LOT of tightness on the left side of my face and eye, pain when I turn my eyes to the left or right, and the whole left side of my head is still completely numb from the surgery. I'll post more as soon as I find out anything.
Take care,
Sue
4 comments:
http://www.healthline.com/search?q1=cavernous%20hemangioma&utm_source=serp2&utm_medium=google&utm_campaign=serp&utm_term=cavernous%20hemangioma
Hi Sue, Thanks for keeping everyone updated on your Blog. The more you share your information, the more feedback you'll get. That's why I believe in using clinical trials when they are appropriate. Sending you Zen. Neva
Hiya Sue -
It's now the 7th and I think you're probably going to have your appointments. I hope that they go well and you get some satisfaction.
I'm sorry to hear of another tumor.
The Amethyst Gordons and token Irish are sending you all the Zen we can for a conclusion to all this so you can get on with life.
Peggy :)
slelinhares.blogspot.com is very informative. The article is very professionally written. I enjoy reading slelinhares.blogspot.com every day.
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