Wednesday, October 18, 2006

Double Vision

Yesterday was 2 Months since my surgery, time sure does fly right by! I had hoped to feel so much better then I actually do by now. The first three weeks after the surgery I was doing great and then something happened that still doesn't have an explaination and all of a sudden I had jaw and gum pain, double vision, memoryloss, unsteadyness when standing, and a few other things. Thankfully the pain in my jaw and gums has gone away about 90% and I can open my jaw a bit better now...at least I can eat :-)

I still have the double vision and the sight in my left eye is only half of what it used to be. Everything has a bright yellowish tint to what I see out of that eye too. I have had this for about 5 weeks now and it is getting really old. I love to read and do crossword puzzles, work at the computer or any of a number things that require good sight and I find it very frustrating. I wear an eye patch most of the time so I don't have the double vision...since it is almost Halloween people will think it is part of a pirate costume LOL.

Tomorrow I have an appt at Joslin Center for Diabetes for an opthlamic ultrasound. Joslin is right accross the street from Brigham & Women's Hospital and both are a part of the Harvard Teaching Hospital's Group - and that is where they do their ultrasounds of the eye. I was wondering just how they did the proceedure and asked our friend Gary (who lost his left eye a few years ago) if he had it done before they decided to remove his eye and he said yes and that it didn't hurt (yeah!). They put gel in your eye and then use a smaller version of a regular handheld ultrasound thingy (can't remember the right word for it right now). It has a lens that is placed on your eye so they can do the ultrasound. What they are looling for is if there is a dent in the back of my left eye. The NeuroOphthalmologist that I saw last week did a number of tests during his exam and as he told me about getting this test he mentioned that he thought there was a dent in the back of my eye perhaps caused by the mesh that may have moved. This ultrasound will give a better look to that area of my eye. I'm not sure what I want them to find, but if there is a dent in my eye caused by the mesh then it will have to be fixed and I don't like that scenario :-( To top it all off I can't get another appt with the NeuroOphthalmologist until Nov. 29 to get the results and find out what I need to do to get my sight back! That is his next available appt...almost 6 weeks from now. I tried to get something sooner because I don't want to go for that much time before finding out what is going on (plus I hate this stupid eye patch) but was told that there was nothing sooner but to call back on Monday and perhaps they will have had a cancellation (hope so!).

It has been cloudy and overcast for a couple of days and every now and then the sun peaks through the clouds, just enough to make you smile....that has been how I have felt recently too as this situation drags on. Thanks to everyone who has left a comment, they are bits of sunshine in a cloudy day :-)

1 comment:

Anonymous said...

Hi Sue! Sometimes being on the cutting edge of medicine is great, and then there's the waiting time. Especially the waiting to feel better time. Those hours sometimes seem to stretch out forever, believe me I know...But Sue, YOU sound so much stronger and well organized than you did just a month ago. The problem solving in neurology is tedious, in my experience. So keep your patience on hand. You have a whole, not just nationwide, but global cheering section, waiting to hear from you, and wishing you well!Let us know what the NeuroOpthamologist says. Much Setter Zen! Neva